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Family Fun Day - Sunday, August 27, 2006


I can't believe it has been a year since Simon passed away.  It's been a difficult year, and each day I reflect on what we were doing last year at this time with Simon in our lives.  I continue to love him more each day as I realize how he's not only touched our family’s life, but many others’, too.  It’s hard to imagine that we had a son, he fought for a year and now he is gone.  It is a feeling that is indescribable.  It sometimes feels like a dream, more like a nightmare, but it is our reality.  I feel very blessed to have had Simon in our lives, even if it was for one “short” year.  A year that seemed like an eternity when we were living it, but I’d do anything to have it all back.  We were committed to a life that we were going to have with a special needs child. 

This is why I decided to start a foundation, Simon's Angels, to keep his memory alive by helping transplant recipients, their families and Pediatric ICU children at Jackson Memorial Hospital, in Miami.  I know you probably wonder, why there, why not help locally?  It is first and foremost due to the fact that Jackson Memorial is one of two centers in the U.S. that performs Multi-Visceral (multi-organ) Transplants, the procedure of which Simon was in need.  Also, our heart is there because Simon was there for so long and we saw such a need for help.  We will not overlook the needs of local patients; we will, of course, reach out at home as well.  (continue)